At our last ophthalmology appointment, the doctor said that
it was time to do surgery on Connor’s eye.
Since last July his left eye has been drifting in when he
looks right. It’s bad enough that his
pupil completely disappears and it’s preventing proper vision development. This
is a different surgery than he had on his eye at 7 weeks, this one will involve
his eye muscle. It’s scheduled for May
24 at the Children’s Hospital of Philadelphia.
If all goes well with the surgery and Connor coming out of anesthesia,
he won’t need to spend the night.
Prayers and well wishes are welcomed starting now!
In happier news, Connor is progressing nicely in his
feeding. Maybe the Speech Pathologist
that started a few weeks ago has the magical touch or maybe the
homemade food is really helping or maybe he was just ready to turn the corner,
whatever the reason, we’ll take it! His
strange sucking tongue pattern is almost gone, he usually has good lip closure
and sometimes even opens his mouth when he’s ready for another bite! He still has a long way to go, but it’s nice
to have some progress in this area.
The Speech Pathologist works with feeding, but also with
communication. Right now, Connor has one
word – more. It’s actually comes out
“mo”, but there’s no misinterpreting what he’s saying. He’s said “book” a few times and said “ma”
the other day when I picked him up from the sitters. While he can’t verbalize a whole lot, we know
he understands quite a bit. He knows our
names and certain objects, he follows certain commands (the biggest deal right
now is that his hands are constantly in his mouth, so “hands down” is our
mantra with him), he looks to the window when we say “bus” (he sits there every
morning and watches the school buses go by) and a host of other things to let
us know he’s paying attention. So
hopefully we can develop a mechanism for him to communicate back to us because “mo”
just isn’t going to cut it for much longer.
He’s also had some cool “firsts” in the last few weeks. He got to ride in the shopping cart seat for
the first time while I was running errands for work. He had bumpers on either side, but really
seemed to like this new view on shopping.
Connor also had a first at the nearby park – his first time
swinging! He loved it and I know that as
he gets stronger this summer his time in the swing will increase.
Prayer and good wishes requests: obviously for Connor’s
surgery, for a positive feeding appointment next week and
for continued progress physically and with his feeding.
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