There have been a few times recently that I've been doing
something with Connor and caught myself thinking, “I can’t believe I’m still
doing this with/for my almost 3 year old.”
You see, I hadn't planned on having a child with multiple disabilities.
I don’t know that too many people do. So
there are lots of things that surprise, disappoint and confuse me. I think it’s worth documenting some
of those everyday tasks that I didn't think I would still be doing…
Washing and using bottles daily
Pureeing food
Spoon feeding my son
Using bumper pads on his crib
Having one sided conversations
Guarding him against face licking dogs
Fearing he’ll fall over and hurt himself while sitting
Laughing at the idea of starting potty training
Carrying him. All.
The. Time.
Looking for new toys or books in the infant/early toddler
section
Speaking for him when people talk to him
Taking him to a private sitter
Making almost all choices for him
I could go on, but those are the highlights. It’s amazing how different our routines and
roles are with Connor than they were with Clara. I know you’re never supposed to compare your
kids, no matter the situation, but man...it’s hard sometimes not to remember back
to when she was almost three and all the things she and we were either not
doing or doing.
It’s my prayer every day that one day soon we’ll be able to
take some of these things off the list.
One day soon.
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| Happy Connor - September 2014 |
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| Sad Connor - September 2014 |
Ah, yes...the things we end up doing MUCH MUCH MUCH longer than we thought we would....but then there are victories! And you get excited over a new school bus that is MUCH lower to the ground than the "old" school bus....
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