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| Frosting Face |
We had a fabulous party for Connor’s 2nd
birthday. There were family, friends,
yummy food, dog decorations, cake and games!
Connor enjoyed the frosting on his cake this year. He was quite the mess! His OT was happy he had such a tactile
experience!
Not a ton to report on the medical front, thankfully. We are now followed by a great nutritionist
through Early Intervention because we’re no longer seeing the nutritionist with
the Feeding Team at CHOP. She mostly
monitors his weight and gives ideas about different foods and textures to
try. We’re also starting augmentative
communication strategies. A specialist
was out and suggested really trying to teach “yes” and “no” both with words and
head nodding. She is also going to get
him an iPad to work on fine motor and communication skills. I think we’ll have a very jealous 8 year old
on our hands soon!
I tried to get Connor into a developmental behavioral
specialist to help figure out some ways to curb his tongue biting. The wait list at CHOP is nine to twelve
months long. The next best place isn’t
in-network for our insurance and so now I need to move to Plan C. If you’re not sure what to do with your life,
I suggest going into developmental pediatrics– there’s evidently a pretty big
need. I’m also trying to get him in for
new hand splints and braces for his feet.
Hope to conquer that in the next two weeks.
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| First time in a restaurant highchair |
Connor continues to make a lot of sounds, but really no new
words. He’s trying REALLY hard to say
the “f” sound, so I think that will come soon.
He’s following more instructions like “pat the ___” and “hand ups, hand
down”. The 6,000 times we’ve all sung
“If You’re Happy and You Know It” with him have also paid off. He now claps (more like pats) his hands,
kicks his feet and raises his hands up on the appropriate verses. Carrie has also taught him to wave hi and
bye. He’s a bit more choosy with these,
but he can do it!
Connor has graduated to two seemingly small, but VERY
helpful stages for life out and about in the world. With only some back support, he can now sit
in a high chair at a restaurant and in a cart at the store. So amazingly freeing to not have to drag his
eating chair around and to not have to manage a stroller and a cart.
It’s been the little things this month – and for each and every
one of those we give thanks!
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| Bonus pic of these cuties at the park this fall! |
