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| Connor sitting with his legs in a bow! |
It’s been a while since I’ve given an update on our little
guy, so here it goes...
- Connor is 3 years old!
We celebrated with a little party with Brent’s family, Carrie’s family
and some of his therapists. He loved
being the center of attention that night and tried a little bit of his
cake. As his birthday present, we took
him and Clara to Sesame Place for the Halloween bash. He loved the sights and sounds and even got
to go on a few rides!
- His three year old pediatrician visit went very well. He has gained 8 pounds and grown 3 inches
since his last check up. For the first
time in his life he’s at the 50th percentile for weight instead of
hanging out at the low end of things. The doctor prescribed a few routine, annual Joubert Syndrome tests (blood work, renal ultrasound, GI check up) and
recommended putting Connor on the little potty chair a few times a day. I laughed, but she was serious about it so we’ll see
how it goes!
- We said good-bye to the women we dubbed "Connor's Council of Ladies" - the four therapists who have journeyed with him and us for two and a half years. There were many tears and hugs. We hope to stay connected with them and share the awesome things Connor does in the months to come thanks to the strong foundation they helped to lay for him. Thank you to Beth, Sandy, Deirdre and Katie!!
- Connor has taken great strides with his walking. While he still needs maximum support, he is
moving his feet independently and seems to understand that it’s a way to
get from where he is to where he wants to be.
We practice a lot and he is fussing less and less about it. So proud of him!
- Transition with the new line up of therapists is going ok. We’re still getting used to each other and
trying to figure out the schedule. He
has seven therapy appointments each week!
I’m also trying to get him into a feeding program and hoping the insurance
company gives us the nod soon so we can keep working hard on that.
- This Sunday is the fundraising concert our church’s Director of Music (and Carrie’s husband!) is putting on. He’s raising thousands of dollars for the Joubert Syndrome Foundation and we are so humbled and honored by his efforts. We are looking forward to a fun afternoon with lots of good music and sharing about Joubert Syndrome.
Current prayer and happy thoughts requests include: for continued
progression with standing, walking and feeding, positive outcomes for his blood
work and ultrasound and for patience and wisdom for all his new therapists.
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| Connor was Rajah for Halloween and Clara was Princess Jasmine |
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| We visited the National Aviary and Connor LOVED watching the penguins! |
