Transition

One of his Kindercare teachers helping him
marble paint.

The last six weeks have been marked by transition. The biggest transition being that Brent finally found employment in Illinois (yay!) which means he is no longer a stay at home dad and the kids are back to day care when they aren’t in school.  

When we first bought the house in Bartlett, I looked at several day cares in the area and again were turned away from two because of Connor’s needs (much like our previous experience). Then I found a Kinder Care facility that not only was willing to take Connor, but was excited to welcome him. As luck would have it, when I called almost 18 months after our first visit, they still had room in their Pre-K room and had recently started a School Age program that had space for Clara. It was meant to be! Connor’s teachers are so great. They include him in the activities and go above and beyond every day with feeding, diapering, extra attention and patience. We are so thankful.

Doing a project during the bug unit

 The transition to our new reality has been very tough for Connor.  He has been sick with a cold and an ear infection for weeks and is so tired because of the new schedule and being sick that he isn’t focusing as well at school. Then a week or so ago we found out he is allergic to the amoxicillin he was taking for the ear infection which meant a trip to Urgent Care. I thought the first couple weeks would be rough – I wasn’t prepared for a month and a half of him being crabby, tired and just not himself. He’s finally starting to feel better and I’m hopeful that will help with an attitude and energy adjustment.

When Brent started back at work, we had to stop our extra therapies at Easter Seals. While I really want Connor to continue making progress, we just couldn’t figure out the scheduling to make it work. We’re hopeful to transition back to at least two of the therapies soon.

Another transition has started – Connor is registered for Kindergarten! He is being mainstreamed at our neighborhood elementary school. Clara will be a sixth grader at the same school. So while we are excited for the kids to be at school together, we’re also worried about a full day program with 28 other kids in the classroom. We shall see.

Lil buddy and I on my birthday

We still haven’t ordered his augmentative communication device.  We’ve been trialing, testing and thinking about this since the beginning of November.  I am SUPER annoyed it’s taking this long. I wanted to have the device ordered by the end of January, now I’m hoping for the end of May.

One final thing for today – I’m hosting a LuLaRoe fundraiser for the Joubert Syndrome & Related Disorders Foundation Friday, May 12 – Saturday, May 13.. If you’d like to join us, make a request through this link.

More again soon, but for now prayer requests for health, a productive end to the school year and that our insurance company approves the communication device without hassle or delay.